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Patient Expectations

 

PATIENTS AS SHAREHOLDERS IN THE EHR INITIATIVE   

The focus of adoption of EHRs has centered on physicians because they are the gate keepers to any widespread implementation and use; however, it is patients who should be at the center of initiatives. How will patients want to interact and use EHRs? What do patients know about EHRs? What would patients be able to and want to add to the data already being gathered concerning EHR adoption? If the use personal health records (PHRs), how readily will they be able to integrate health information they have supplied into their doctor's EHR? The following data includes patient input into the topic of adopting EHRs. Registered users can access more information regarding EHRs.

Patient

Focus

Synopsis Registered User Only
EHRs This article, from AHIMA, features a physician who sought his patients' input prior to purchasing an EHR. Not only did their input affect his EHR decision type, but the placement and use of the EHR as well -- the workflow of his office. Patient Preferences Prod Purchase
Patients' care may be adversely affected by missing information in as many as 220 million patient visits each year, according to a study published by the Journal of the American Medical Association. EHRs can help to alleviate the problem. Study Finds Doctors with EHRs Have More Complete Patient Information
Although this is an article written by two German authors, it is worth including because of their focus on a "new paradigm" of patient centered care and allowing patients to access their health records via the EHR. Patients and EHRs - Tele Home Monitoring Reference Scenario
This article, published by AHIMA, describes a Boston healthcare system's approach to providing patients access to their electronic health records (EHRs) via Patient Gateway, a secure, Web-based portal and how HIPAA affects what can be done. Implementing Patient Access to Electronic Health Records Under HIPAA: Lessons Learned
Brian Baum would like 20 million people to create and manage their EHRs on Duke University's Health Data Exchange because he says it will lead to the elimination of filling out the same tedious paper forms at physicians' offices, allow more expeditious treatment in the ED, etc. Baum also believes that "the ponderous discussions about data standards, coding algorithms, and government funding will rapidly be replaced by entrepreneurial IT investments and innovative new service models that directly respond to consumer demand." He sees this as analogous to the proliferation of bank ATMs. Manage Our Own EHRs?
About 500 employed physicians of Evanston (Ill.) Northwestern Healthcare have offered patients a Web portal service enabling access to their medical records and to communicate with physician practice staff. This article from Health Data Management features the roll out of this patient centered initiative. Evanston Unveils Patient Portal
Personal Health Records

The personal health record (PHR) is an electronic, universally available, lifelong resource of health information needed by individuals to make health decisions. Individuals own and manage the information in the PHR, which comes from healthcare providers and the individual. The PHR is maintained in a secure and private environment, with the individual determining rights of access. The PHR is separate from and does not replace the legal record of any provider. This article from AHIMA offers details concerning PHRs.

The Role of the Personal Health Record in the EHR

AHIMA

This Wall Street Journal article highlights a number of tools and services available for consumers to create, store, and share their own medical records. These range from emergency wallet cards that can be printed off the Web to portable gadgets that store a family's entire medical history on a microchip and cost less than a new iPod. A growing number of health plans are also offering special Web sites with free medical record-keeping tools for members. Your Medical History on a Microchip:
Having Key Data Ready in an Emergency
This article addresses the chip that the U.S. government is researching that would be implanted under the skin of patients. Both the pro and con of this approach are featured regarding this initiative.

VeriChip: Helpful Tracking Device or too "Big Brother"?

What Patients Care About Physicians and vendors encourage EHRs to improve quality of patient care but this survey underscores the need for physicians to use EHRs as only a tool -- one that will allow patients to have more quality interactions with their physicians. Patient Reports of Preventable Problems and Harms in Primary Health Care
The Institute for Healthcare Improvement is a not-for-profit organization driving the improvement of health by advancing the quality and value of health care. Founded in 1991 and based in Cambridge, Massachusetts, IHI offers comprehensive products and services. This article on general patient centered care includes guidelines that encourage patients to be involved in the development of all health related changes (including EHRs)

Patient Centered Care

Institute for Healthcare Improvement

 
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